Competence and Vulnerability in Biomedical Research

Name: Competence and Vulnerability in Biomedical Research
Brand: Springer-Verlag New York Inc.
SKU: 9781402086038
Price: 63130 HUF
Availability: InStock

Szerző: Philip Bielby

Nyelv:

Kötés: Kemény kötésű

Kiadó: Springer-Verlag New York Inc.

Elérhetőség: Beszállítói készleten alacsony példányszámban

Küldés 13-18 napon belül

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Enhanced knowledge of the nature and causes of mental disorder have led increasingly to a need for t...

Információk a könyvről

Szerző

Philip Bielby

Nyelv

Angol

Kötés

Könyv - Kemény kötésű

Kiadva

2008

oldal

236

EAN

9781402086038

ISBN

1402086032

Enbook ID

01418460

Kiadó

Springer-Verlag New York Inc.

Súly

1170

Méretek

155 x 235 x 22

Teljes leírás

Enhanced knowledge of the nature and causes of mental disorder have led increasingly to a need for the recruitment of cognitively vulnerable participants in biomedical research. These individuals often fall into the grey area between obvious decisional competence and obvious decisional incompetence and, as a result, may not be recognised as having the legal capacity to make such decisions themselves. At the core of the ethical debate surrounding the participation of cognitively vulnerable individuals in research is when, if at all, we should judge them decisionally and legally competent to consent to or refuse research participation on their own behalf and when they should be judged incompetent in this respect.§In this book, the author develops a novel justificatory framework for making judgments of decisional competence to consent to biomedical research with reference to five groups of cognitively vulnerable individuals - older children and adolescents, adults with intellectual disabilities, adults with depression, adults with schizophrenia and adults with dementia, including Alzheimer s disease. Using this framework, the author argues that we can make morally defensible judgments about the competence or incompetence of a potential participant to give contemporaneous consent to research by having regard to whether a judgment of competence would be more harmful to the generic rights of the potential participant than a judgment of incompetence. The argument is also used to justify an account of supported decision-making in research, and applied to evaluate the extent to which this approach is evident in existing ethical guidelines and legal provisions. The book will be of interest to bioethicists as well as psychiatrists and academic medical lawyers interested in normative questions raised by the concepts of competence and capacity.

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Competence and Vulnerability in Biomedical Research

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